How the beat goes on for Glen Dixon Sr.
Sunday, November 26, 2006

Drive down Second Avenue through Hazelwood and you'll see a billboard for McDonald's, another for a law firm, a third for "The Nutcracker," and on and on through "Don't Let Minors Drink" and "Pregnant and Scared."

It can be a withering stretch with most of the messages hardly registering; I only know these because I jotted them down on my last drive. But for several months last summer, there was a pair of billboards for the late Glen Dixon Sr. that commanded attention.

"A heart of gold stopped beating," a poem began beside a photo of a man. "Two willing hands at rest/ God broke our hearts to show/ He only takes the best."

A reader who took that stretch daily was captivated and wanted to know more.

"The billboards are still up and I continue to feel the love for him that emanates from them," Theresa C. wrote.

So the afternoon before Thanksgiving, I visited Rena Dixon at her home in Hazelwood, just up the hill from Second Avenue.

Glen and Rena Dixon met cute, as they'd say in Hollywood. She was a barmaid at the High Rollers club in Homestead in 1990 and he was a chef Downtown at what was then the Vista Hotel. Glen would leave that job and come to the High Rollers to spin records, and after a while Rena was telling him he couldn't always be late.

One night the manager put a record on, and Rena told him, "I know that song. That's the Caprells!" When she was about 10 years old, her older brother, Flint, a bouncer at a club in Beltzhoover, had let her in to see The Caprells, a family band that was Pittsburgh's funky answer to the Jackson Five.

The manager laughed at her reference.

"You don't even know who they are," he said. "Rodney and Glen and Joyce and Mickey. You work for The Caprells."

She'd had no idea the Dixons, owners of the club, were the Caprells. Nor had Glen Dixon ever let on that he was one of the owners. When she later asked him why, he just told her none of it was important. He was nothing but kind.

They became friends, fell in love soon enough, and in January 1992 they flew to Las Vegas to get married. They became inseparable.

"People didn't say Glen's name without saying my name."

In 1998, Glen couldn't shake a cold. He went to a string of doctors ending with a lung specialist who diagnosed him with sarcoidosis. Tiny lumps, called granulomas, were on his lungs. He took steroid treatments for a year to shrink them.

He was in seemingly perfect health. He never missed work, never smoke, drank or ate meat, took his vitamins and, as a singer who cared for his voice, would never be in the same room with anyone doing so much as spraying deodorant. Some scientists think sarcoidosis is a response to something in the environment, and Glen had spent most of his life living near the coke works in Hazelwood. But the Dixons weren't overly worried about this disease that can be treated but not cured; they'd been told the mortality rate for sarcoidosis was about 2 percent.

About 3:15 a.m. last Jan. 31, Rena, who never awakens during the night, sat straight up in bed to find her husband taking his last breaths. She screamed for her daughter, Lanaina Graham, a medical student at the University of Pittsburgh, to help, but neither she nor the paramedics could save him. He left four adult children in the family that he and Rena had formed: Lanaina, Will, Glen and Angel. An autopsy showed Kenneth Glen Dixon Sr. died at 54 of cardiac sarcoidosis. The disease had spread to every organ in his body.

Rena put the billboards up in time for what would have been Glen's 55th birthday.

"I needed to see him every day, going to work and coming home."

She launched the Heart of Gold Foundation for Sarcoidosis, www.heartofgoldgd.org. Dr. Kevin Gibson of UPMC spoke to her education and support group this month, and the group will meet again at 6:30 p.m. Dec. 20 at the Hazelwood Presbyterian Church on Second Avenue. She hopes to have a walk/run fund-raiser in Schenley Park in April, with proceeds going to the Simmons Center for Interstitial Lung Diseases at UPMC.

She's not bitter. She just knows what Glen would tell her: "Rena, do everything that you can do."

First published on November 26, 2006 at 12:00 am
Brian O'Neill can be reached at boneill@post-gazette.com or 412-263-1947.

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Evening of Elegance ... and the week in review
Monday, August 13, 2007

"We take so much for granted and we never know when it's going to be over," said Rena Dixon, founder of The Heart of Gold Foundation for Sarcoidosis.

Her husband, Kenneth Glen Dixon, passed away two years ago with undetected cardiac sarcoidosis and since then she has dedicated herself, and her organization, to establishing a clinic, finding a cure and raising awareness. Sarcoidosis is an inflammatory disease that can appear in almost any body organ, but often starts in the lung or lymph nodes.

Rebecca Droke, Post-Gazette
Rena Dixon and Towanda Brown
Click photo for larger image.
Saturday night Mrs. Dixon, along with Towanda Brown, chaired the first annual "Evening of Elegance, The Purple Carpet Affair" at MonTage Interior Design Studio, Wilkinsburg.

The studio, done in rich fabrics with plenty of intimate seating arrangements, offered the right setting for a sophisticated evening of dining, dancing and entertainment.

A fashion show presented by Tracey Holt and solo performances by Brian Wright and Dell Saunders added to the event's glamour.

After filling their plates at the buffet, guests browsed the silent auction table or took a chance on the raffle.

Rebecca Droke, Post-Gazette
Mary Heards, Rochelle King and Tonia Jones.
Click photo for larger image.

Among the more than 100 friends, family and supporters who walked the purple carpet for a good cause were emcee Jonas Chaney, committee members Mary Heards, Rochelle King and Tonia Jones, Glenda Fulton (founder of the National Sarcoidosis Foundation) with her husband Charles Skillom, Albert and Sarah Dixon, Toshia Clark, Rev. Michael and Adele Murray and three of Mrs. Dixon's four children Angel, Lanaina and Glen Dixon Jr. (her son Will is on his way back to Iraq).

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Second annual Kenneth G. Dixon Sr. Walk/Race for Sarcoidosis
By Courier Newsroom | Published  08/7/2008 | Health | Rating:
Foundation helps keep husband’s memory alive

Rena Dixon, founder and president of the Heart of Gold Foundation for Sarcoidosis, started the nonprofit foundation in memory of her husband, Kenneth Glen Dixon Sr., who passed away Jan. 31, 2006 from undetected cardiac sarcoidosis.

Dixon said her husband lived a fulfilling life as a husband, father and grandfather. He was also songwriter, producer, arranger and vocalist for a popular music group, the Caprells.



HITTING THE ROAD—Participants in the second annual Kenneth G. Dixon Sr. Walk/Run for Sarcoidosis make their rubber hit the road in East Liberty at Highland Park. The event, sponsored by BREATHS, is held in memory of Dixon, who died of the disease, and to raise money for research.

Along with his love for music, Kenneth was also an international chef. He spent time creating exquisite cuisines from around the world, as well as a personal assistant on the television series, “The Chef Brocket Show.” But along with his work, he was also a very active community leader. His passion for life was extraordinary.

The disease that took away his life, sarcoidosis, was once thought to be a rare condition, but is becoming more common. It is an inflammatory multi-system disorder that affects many organs in the body. Unfortunately, there is no known cause or cure for this devastating disease.

The Heart of Gold Foundation was put together to promote awareness and to educate others about sarcoidosis. Its goal is to support research and aid in the efforts to help find the cause and a cure for sarcoidosis, while also helping to improve the quality of life for those affected by the disease.

The foundation uses the acronym BREATHS when participating and hosting all public events connected with sarcoidosis. It stands for Believing Research and Educating All to Help Sarcoidosis.

The foundation plans to open the Kenneth Glen Dixon Sr. Center of Excellence for Sarcoidosis, which will combine patient information with laboratory findings to provide clinical relevance to basic science research. The foundation is the first chapter in the Pittsburgh area to publicly raise awareness of this disease. For more information, visit www.heartofgoldgd.org.

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